#DonateToHonor USH1B Fundraiser - In Honor of Captain Jeff Haney

We recently met a family battling the same genetic disorder that Lia has (Sisters For Sight). They have two daughters with Usher Syndrome Type 1B. Today (Nov 11th 2019) – Veterans Day – always has special meaning to me because my father is a Vietnam Vet (Sgt. 82nd Airborne) and earned the Purple Heart after being wounded. However, I can’t begin to imagine what this day means for families who have lost loved ones who made the ultimate sacrifice. Ava and Stella, both diagnosed with Usher 1B lost their father – Captain Jeff Haney (USAF F-22 Pilot) – at the ages of 5 and 2 and soon after learned the cause of their deafness was a rare genetic disorder called Usher1B, and it was now also rapidly robbing them of their vision.

Ava and Stella are now 11 and 14. In honor of Jeff and his sacrifice, Anna (Ava and Stella’s mom) is raising money to help fund medical research that can save their vision. To support Anna, Ava and Stella please follow this LINK to donate

Their fight is our fight.