Our First Year | 2019 Accomplishments

Our First Year

As our first year comes to an end we want to share what we’ve accomplished, because without you and your support, we wouldn’t have gotten here.

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1 Invaluable Partnership

We started by partnering with the Foundation Fighting Blindness - the world’s leading Inherited Retinal Disease foundation. This partnership has allowed us to collect tax exempt donations - specifically for Usher Syndrome 1B research - and has given us access to their robust scientific advisory board, as well as their kind and supportive team.

454 Followers

Thank you for sharing our efforts and following us on Facebook, Instagram and Twitter. Your continued help spreading awareness about Usher Syndrome is incredibly valuable to our success.

1,051 Donors

We are grateful and humbled by this number. 1,051 friends, family, peers, co-workers and complete strangers felt compelled to help us save the vision of our daughter and thousands of other children and adults, and we can’t thank you enough. We hope you’ll continue to support us, because we’re going to need your help fighting childhood blindness.

237,999 Dollars

All funds raised before the end of the year will go directly towards sight saving research. In January 2020 the FFB’s Scientific Advisory Board and oversight committee will evaluate all USH1B and RP research programs to determine where our funding will have the most impact. On average it costs $100,000 a year to support a research track of work and we currently have the ability to support multiple tracks, or one for over 2 years - that’s amazing! We’ll let you know when Save Sight Now funding is awarded and the impact your donations will be having. CLICK HERE to see a list of our potential funding recipients.

Thank you so much for supporting us this year,, we look forward to seeing the impact your donations have in 2020.