Posts tagged Local Support
Our First Year | 2019 Accomplishments
 
 
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Our First Year

As our first year comes to an end we want to share what we’ve accomplished, because without you and your support, we wouldn’t have gotten here.


Invaluable Partnership

We started by partnering with the Foundation Fighting Blindness - the world’s leading Inherited Retinal Disease foundation. This partnership has allowed us to collect tax exempt donations - specifically for Usher Syndrome 1B research - and has given us access to their robust scientific advisory board, as well as their kind and supportive team.

454 Followers

Thank you for sharing our efforts and following us on FacebookInstagram and Twitter. Your continued help spreading awareness about Usher Syndrome is incredibly valuable to our success.

1,051 Donors

We are grateful and humbled by this number. 1,051 friends, family, peers, co-workers and complete strangers felt compelled to help us save the vision of our daughter and thousands of other children and adults, and we can’t thank you enough. We hope you’ll continue to support us, because we’re going to need your help fighting childhood blindness.

237,999 Dollars

All funds raised before the end of the year will go directly towards sight saving research. In January 2020 the FFB’s Scientific Advisory Board and oversight committee will evaluate all USH1B and RP research programs to determine where our funding will have the most impact. On average it costs $100,000 a year to support a research track of work and we currently have the ability to support multiple tracks, or one for over 2 years - that’s amazing! We’ll let you know when Save Sight Now funding is awarded and the impact your donations will be having. CLICK HERE to see a list of our potential funding recipients.


Thank you so much for supporting us this year,, we look forward to seeing the impact your donations have in 2020.

 
ONA.Life | Random Acts of Kindness Campaign
 

Ona gives back to their community through random acts of kindness initiative donating $1 from every sale to Save Sight Now to help fund medical research that could cure childhood blindness related to #ushersyndrome. To all my local Marin and SF friends looking for a socially conscious cannabis dispensary with high quality medical products that delivers and is now supporting Lia and our mission, PLEASE visit www.ona.life for all your cannabis needs. Check out their article in 7X7

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Sweet Lia Dubbel | Craft Beer for a Good Cause
 

Our local brewery the @stateroom has named their seasonal Dubbel🍺after Lia - Sweet Lia Dubbel - and is donating a portion of all sales to savesightnow.org in order to help us fund #Ushersyndrome research. Swing on by The State Room on 4th st in San Rafael, CA to quench your thirst and support a great cause. If you can’t make it there, you can still support Lia and others with Usher Syndrome HERE

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